Providing data for a COVID-19 registry research network -- OCHIN

Social Determinants of Health. The Foundation's Health Data for Action initiative is a program aimed at identifying actionable insights from hard-to-access health data to build the evidence base for a Culture of Health.Under this grant project, the grantee will participate in an open, distributed COVID-19 research project along with other data providers and collaborators. The initial goals will be to work with the group to jointly define: (1) core data elements, ideally mapped to at least one open-data model (such as OMOP, PCORnet, i2b2, FHIR), and (2) a process or processes by which these data elements can be queried for jointly developed research questions. The grantee will respond in a reasonable timeframe to data requests. The grantee will generate at least one report consisting of aggregate counts of COVID-19 patients and specified attributes of those patients (also aggregate, not individual-level data), which will be validated by participants and then made available to the public. The grantee will also contribute to a data-use-agreement process to standardize researcher access to the datasets, while retaining local control over access decisions.