Caring and waving: longitudinal study on the consequences of restrictive COVID-19 measures for relatives of people with intellectual disabilities and their need for support

  • Funded by Netherlands Organisation for Health Research and Development (ZonMW)
  • Total publications:0 publications

Grant number: 1.043E+13

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Key facts

  • Disease

    COVID-19
  • Start & end year

    2020
    2022
  • Known Financial Commitments (USD)

    $134,906.18
  • Funder

    Netherlands Organisation for Health Research and Development (ZonMW)
  • Principal Investigator

    Dr. HR Boeije
  • Research Location

    Netherlands
  • Lead Research Institution

    NIVEL
  • Research Priority Alignment

    N/A
  • Research Category

    Secondary impacts of disease, response & control measures

  • Research Subcategory

    Indirect health impacts

  • Special Interest Tags

    N/A

  • Study Type

    Non-Clinical

  • Clinical Trial Details

    N/A

  • Broad Policy Alignment

    Pending

  • Age Group

    Unspecified

  • Vulnerable Population

    Disabled persons

  • Occupations of Interest

    Unspecified

Abstract

Project description During the corona crisis, relatives of people with an intellectual disability had to deal with the visiting arrangement in care institutions (waving) or that the family member came to live at home (care). Care, support and daytime activities often decreased, and contact with other people also decreased. There will be many changes for loved ones and their relatives in the coming period. Questionnaires and interviews are used to investigate the consequences of the corona measures on the quality of life of loved ones and on the care and support they provide. It is also examined which support family members receive and need themselves. The aim of the study is an improved approach to loved ones in the coming period. In 2020 and 2021, questions will be asked to loved ones at three times. The research is carried out together with an expert by experience and those involved in care for the disabled. In addition to the dissemination of knowledge, recommendations are also made for professionals and policymakers, among others.