COVID-19: Data and Connectivity - National Core Study (D&C-NCS)
- Funded by UK Research and Innovation (UKRI)
- Total publications:68 publications
Grant number: MC_PC_20029
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Key facts
Disease
COVID-19Start & end year
20202021Known Financial Commitments (USD)
$10,945,900Funder
UK Research and Innovation (UKRI)Principal Investigator
Professor Andrew MorrisResearch Location
United KingdomLead Research Institution
Health Data Research UKResearch Priority Alignment
N/A
Research Category
Health Systems Research
Research Subcategory
Health information systems
Special Interest Tags
Data Management and Data Sharing
Study Type
Non-Clinical
Clinical Trial Details
N/A
Broad Policy Alignment
Pending
Age Group
Not Applicable
Vulnerable Population
Not applicable
Occupations of Interest
Not applicable
Abstract
The Data and Connectivity study sits across the other National Core Studies and aims to build a national health data research capability to support COVID-19 research questions, ensuring datasets are discoverable and accessible and linkages are established to answer the priority research questions from the other five National Core Studies. Making data available for wider research use will increase the scope of benefits beyond the specific studies above, leading to unexpected benefits and boosting UK research capacity more generally, increasing return on investment for the NCS programme. Data integration and harmonisation of methods and standards will enable rapid research and development of new interventions and technologies across the spectrum of COVID-19, and knowledge and technology transfer to other clinical and public health areas. Over the next 6 months the Data and Connectivity study will: 1. Map the initial high priority COVID 19 datasets required by the National Core Studies. 2. Deliver the necessary data infrastructure and services (quality and timely data, ability to link the data and provide access to data for multiple researchers) in 5 Trusted Research Environments across the UK to allow the initial high priority research questions to be answered efficiently in a transparent and trustworthy way. 3. Deliver a single "shop window" for the COVID-19 National Core Studies to ensure the priority datasets for COVID 19 research are findable, accessible, interoperable and reusable (FAIR) by enhancing the UK Health Data Research Innovation Gateway Collation and linkage between datasets is critical to bringing the core studies together, ensuring that each of them can deliver against their policy priorities e.g. hospital data may not currently be linked with GP data and wider community data (e.g. socioeconomic data or data on housing and the built environment). Access, cleaning, linkage and use of these datasets together is needed to fully understand links between these factors and outcomes.Delivery of the COVID-19 Data and Connectivity Study will involve close interaction with data custodians, the public and patients, and providers of UK-wide national Trusted Research Environments (TREs) to ensure the required data is stored safely and securely, made readily available to approved researchers and is associated with compute, analytical and data services that make it easier to address priority research questions in a transparent and trustworthy way.
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