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Implementing Team-based Outpatient Palliative Care in Parkinson Foundation Centers of Excellence

  • Funded by Patient-Centered Outcomes Research Institute
  • Total publications:0 publications

Grant number: unknown

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Key facts

  • Disease

    COVID-19

  • Known Financial Commitments (USD)

    $191,342

  • Funder

    Patient-Centered Outcomes Research Institute

  • Principal Investigator

    MD. Benzi M Kluger

  • Research Location

    United States of America

  • Lead Research Institution

    University of Rochester

  • Research Priority Alignment

    N/A

  • Research Category

    Clinical characterisation and management

  • Research Subcategory

    Disease pathogenesis

  • Special Interest Tags

    Digital Health

  • Study Type

    Clinical

  • Clinical Trial Details

    Not applicable

  • Broad Policy Alignment

    Pending

  • Age Group

    Unspecified

  • Vulnerable Population

    Unspecified

  • Occupations of Interest

    Unspecified

Abstract

People living with Parkinson's disease (PD) may be at high risk of complications from COVID-19. Also, concerns about getting ill and social isolation due to COVID-19 may affect people living with PD and their families. In response to COVID-19, health systems have moved from in-person care to telehealth. Telehealth provides care to patients remotely using phone, video, or other devices to help manage care. While telehealth improves access, it may create other challenges for patients, families, and clinicians. With this enhancement, the project team will adapt the team-based palliative care program for COVID-19. The team will: Interview people living with PD about how COVID-19 affects their care and quality of life Adapt the program for telehealth and address COVID-19 concerns Adapt the in-person team training to online