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Reconciling the Past & Changing the Future: Engaging Young Adults with IDD-MH and Researchers in CER

  • Funded by Patient-Centered Outcomes Research Institute
  • Total publications:0 publications

Grant number: unknown

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Key facts

  • Disease

    COVID-19

  • Known Financial Commitments (USD)

    $139,999

  • Funder

    Patient-Centered Outcomes Research Institute

  • Principal Investigator

    PhD. Jessica Kramer

  • Research Location

    United States of America

  • Lead Research Institution

    University of Florida

  • Research Priority Alignment

    N/A

  • Research Category

    Secondary impacts of disease, response & control measures

  • Research Subcategory

    Indirect health impacts

  • Special Interest Tags

    N/A

  • Study Type

    Non-Clinical

  • Clinical Trial Details

    N/A

  • Broad Policy Alignment

    Pending

  • Age Group

    Adults (18 and older)

  • Vulnerable Population

    Disabled persons

  • Occupations of Interest

    Unspecified

Abstract

This project has added three enhancement aims to its work. The project team will: 1) seek to gain an in-depth understanding of the experiences of families of young adults with intellectual and developmental disabilities who have mental health service needs and experiences in the context of COVID-19, and, 2) develop an analytical framework that considers the convergence of cultural contexts and intersectionality on COVID-19-related experiences and outcomes of young adults with IDD-MH and their families. It will then partner with the START National Research Consortium on Mental Health in Intellectual and Developmental Disabilities (comprising multiple stakeholders including those with lived experiences) to apply the analytical framework to data collected about COVID-19 and other data in a national database.