Return to homepagePandemic Pact

Expanding Access to the Infusion Center Model for People Living with SCD

  • Funded by Patient-Centered Outcomes Research Institute
  • Total publications:0 publications

Grant number: unknown

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Key facts

  • Disease

    COVID-19

  • Known Financial Commitments (USD)

    $143,110

  • Funder

    Patient-Centered Outcomes Research Institute

  • Principal Investigator

    MD. Sophie Lanzkron

  • Research Location

    United States of America

  • Lead Research Institution

    Johns Hopkins School of Medicine

  • Research Priority Alignment

    N/A

  • Research Category

    Health Systems Research

  • Research Subcategory

    Health service delivery

  • Special Interest Tags

    Digital Health

  • Study Type

    Non-Clinical

  • Clinical Trial Details

    N/A

  • Broad Policy Alignment

    Pending

  • Age Group

    Unspecified

  • Vulnerable Population

    Unspecified

  • Occupations of Interest

    Unspecified

Abstract

Patients with sickle cell disease (SCD) have challenging medical needs exacerbated by the COVID-19 pandemic. The consequences of SARS-Cov-2 infection and transmission mitigation measures poses medical and social risks to these already fragile patients. This enhancement seeks to augment current work with a study of telemedicine care for adults with SCD. Guided by the National Quality Forum framework, the team will conduct an evaluation of telemedicine on access to care, patient experience, and health outcomes, including health-related quality of life and acute care utilization. Researchers will also assess barriers and facilitators, potential benefits and risks, and satisfaction with telemedicine visits using semistructured qualitative interviews with adults with SCD.