Schooling after Childhood Cancer: Disseminating the Evidence to Improve Outcomes
- Funded by Patient-Centered Outcomes Research Institute
- Total publications:0 publications
Grant number: unknown
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Key facts
Disease
COVID-19Known Financial Commitments (USD)
$139,585Funder
Patient-Centered Outcomes Research InstitutePrincipal Investigator
PhD. Kathy RubleResearch Location
United States of AmericaLead Research Institution
Johns Hopkins School of MedicineResearch Priority Alignment
N/A
Research Category
Secondary impacts of disease, response & control measures
Research Subcategory
Indirect health impacts
Special Interest Tags
N/A
Study Type
Non-Clinical
Clinical Trial Details
N/A
Broad Policy Alignment
Pending
Age Group
Children (1 year to 12 years)
Vulnerable Population
Other
Occupations of Interest
Unspecified
Abstract
Existing evidence reveals gaps in communication between oncology providers and pediatric cancer patients and parents. The project's prior work found that patients and parents are not receiving appropriately timed information from providers about treatment impacts on cognitive skills and schooling or adequate information to advocate for their child's needs. The enhancement will assess the impact of COVID-19 and distance learning on access to related services children with cancer receive and assess stakeholder-perceived utility and satisfaction of receiving neuropsychological care via telemedicine. It will also assess oncology providers' perceived challenges related to patient and family-provider communication and assessment of neurocognitive and school issues in the COVID-19 era and devise strategies to address identified challenges.