Schooling after Childhood Cancer: Disseminating the Evidence to Improve Outcomes

  • Funded by Patient-Centered Outcomes Research Institute
  • Total publications:0 publications

Grant number: unknown

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Key facts

  • Disease

    COVID-19
  • Known Financial Commitments (USD)

    $139,585
  • Funder

    Patient-Centered Outcomes Research Institute
  • Principal Investigator

    PhD. Kathy Ruble
  • Research Location

    United States of America
  • Lead Research Institution

    Johns Hopkins School of Medicine
  • Research Priority Alignment

    N/A
  • Research Category

    Secondary impacts of disease, response & control measures

  • Research Subcategory

    Indirect health impacts

  • Special Interest Tags

    N/A

  • Study Type

    Non-Clinical

  • Clinical Trial Details

    N/A

  • Broad Policy Alignment

    Pending

  • Age Group

    Children (1 year to 12 years)

  • Vulnerable Population

    Other

  • Occupations of Interest

    Unspecified

Abstract

Existing evidence reveals gaps in communication between oncology providers and pediatric cancer patients and parents. The project's prior work found that patients and parents are not receiving appropriately timed information from providers about treatment impacts on cognitive skills and schooling or adequate information to advocate for their child's needs. The enhancement will assess the impact of COVID-19 and distance learning on access to related services children with cancer receive and assess stakeholder-perceived utility and satisfaction of receiving neuropsychological care via telemedicine. It will also assess oncology providers' perceived challenges related to patient and family-provider communication and assessment of neurocognitive and school issues in the COVID-19 era and devise strategies to address identified challenges.