Return to homepagePandemic Pact

Multi-stakeholder Engagement for Enabling Patient-Driven Research

  • Funded by Patient-Centered Outcomes Research Institute
  • Total publications:0 publications

Grant number: unknown

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Key facts

  • Disease

    COVID-19

  • Known Financial Commitments (USD)

    $119,876

  • Funder

    Patient-Centered Outcomes Research Institute

  • Principal Investigator

    PhD. Robert McBurney

  • Research Location

    United States of America

  • Lead Research Institution

    Accelerated Cure Project for Multiple Sclerosis

  • Research Priority Alignment

    N/A

  • Research Category

    Secondary impacts of disease, response & control measures

  • Research Subcategory

    Indirect health impacts

  • Special Interest Tags

    N/A

  • Study Type

    Unspecified

  • Clinical Trial Details

    N/A

  • Broad Policy Alignment

    Pending

  • Age Group

    Not Applicable

  • Vulnerable Population

    Individuals with multimorbidityOther

  • Occupations of Interest

    Not applicable

Abstract

The COVID-19 pandemic presents many challenges to those living with chronic conditions like multiple sclerosis (MS) and racial and ethnic minority populations are disproportionately affected. This project will leverage existing engagement infrastructure, personnel, and stakeholder partnerships to support the development of a COVID-19-related, patient-driven MS research agenda and process to prioritize and disseminate those research ideas. The project has a special focus on reaching underrepresented communities. iConquerMS has launched the COVID-19 in MS Study, which will collect data from MS patients and caregivers on COVID-19 status and testing, and the impact on their health care and quality of life.