Return to homepagePandemic Pact

Diversifying, Expanding and Tracking Patient Engagement in Arthritis Research

  • Funded by Patient-Centered Outcomes Research Institute
  • Total publications:0 publications

Grant number: unknown

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Key facts

  • Disease

    COVID-19

  • Known Financial Commitments (USD)

    $114,001

  • Funder

    Patient-Centered Outcomes Research Institute

  • Principal Investigator

    PhD. William B Nowell

  • Research Location

    United States of America

  • Lead Research Institution

    Global Healthy Living Foundation

  • Research Priority Alignment

    N/A

  • Research Category

    Policies for public health, disease control & community resilience

  • Research Subcategory

    Communication

  • Special Interest Tags

    N/A

  • Study Type

    Non-Clinical

  • Clinical Trial Details

    N/A

  • Broad Policy Alignment

    Pending

  • Age Group

    Unspecified

  • Vulnerable Population

    Unspecified

  • Occupations of Interest

    Unspecified

Abstract

This project will leverage existing engagement infrastructure, including patient stakeholder partnerships and outreach campaigns, to design and conduct an autoimmune COVID-19 project. The project will gather information about COVID-19 and its impact on people living with autoimmune, rheumatic, and related conditions; provide information and support related to COVID-19 for patients; and reach new patients who may be eligible, but not yet engaged with ArthritisPower and patient-centered outcomes research. The enhancement will extend the group's reach to underrepresented patients by translating materials into Spanish and holding COVID-19-related educational webinars for patients with a focus on topics relevant to underrepresented communities.