Return to homepagePandemic Pact

Enhancing Engagement, Research Participation, & Collaboration through the IBD Partners Patient Powered Research Network

  • Funded by Patient-Centered Outcomes Research Institute
  • Total publications:0 publications

Grant number: unknown

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Key facts

  • Disease

    COVID-19

  • Known Financial Commitments (USD)

    $149,252

  • Funder

    Patient-Centered Outcomes Research Institute

  • Principal Investigator

    MPH. Angela Dobes

  • Research Location

    United States of America

  • Lead Research Institution

    Crohn's & Colitis Foundation Inc

  • Research Priority Alignment

    N/A

  • Research Category

    Policies for public health, disease control & community resilience

  • Research Subcategory

    Community engagement

  • Special Interest Tags

    N/A

  • Study Type

    Non-Clinical

  • Clinical Trial Details

    N/A

  • Broad Policy Alignment

    Pending

  • Age Group

    Unspecified

  • Vulnerable Population

    Unspecified

  • Occupations of Interest

    Unspecified

Abstract

This project will build on the existing Inflammatory Bowel Disease (IBD) Partners Patient-Powered Research Network infrastructure and current Engagement Award activities to meet patient demand for information on the effects of COVID-19 among the IBD community. The study team aims to prioritize the information and dissemination preferences of the IBD community related to emerging COVID-19 research to provide critical data for patients to make informed healthcare decisions. The project team will engage IBD patients through a series of virtual focus groups to prioritize COVID-19-related research questions and preferences for sharing information, conduct a systematic review of the published literature to identify relevant research, and conduct further focus groups to inform dissemination activities.