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Improving Patient-Centered Outcomes: Expanding Engagement of the Osteogenesis Imperfecta Community

  • Funded by Patient-Centered Outcomes Research Institute
  • Total publications:0 publications

Grant number: unknown

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Key facts

  • Disease

    COVID-19

  • Known Financial Commitments (USD)

    $138,578

  • Funder

    Patient-Centered Outcomes Research Institute

  • Principal Investigator

    BS. Tracy Hart

  • Research Location

    United States of America

  • Lead Research Institution

    Osteogenesis Imperfecta Foundation

  • Research Priority Alignment

    N/A

  • Research Category

    Secondary impacts of disease, response & control measures

  • Research Subcategory

    Social impacts

  • Special Interest Tags

    N/A

  • Study Type

    Non-Clinical

  • Clinical Trial Details

    N/A

  • Broad Policy Alignment

    Pending

  • Age Group

    Unspecified

  • Vulnerable Population

    Unspecified

  • Occupations of Interest

    Unspecified

Abstract

The enhancement to this project will complement the existing project by ensuring the osteogenesis imperfecta community and the clinicians who treat them are aware of the evolving effects of COVID-19 as they seek to build capacity for PCOR/CER. The Osteogenesis Imperfecta Foundation will convene a panel of experts who will serve as a COVID-19 Task Force. The project team will expand the focus of the PCOR training and toolkit they will create under the existing award to include COVID-19. This inclusion is expected to provide insight into priorities for osteogenesis imperfecta patients