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Stakeholder Alliance for Better Palliative Care for People with Dementia and their Caregivers

  • Funded by Patient-Centered Outcomes Research Institute
  • Total publications:0 publications

Grant number: unknown

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Key facts

  • Disease

    COVID-19

  • Known Financial Commitments (USD)

    $102,085

  • Funder

    Patient-Centered Outcomes Research Institute

  • Principal Investigator

    RN. Carole White

  • Research Location

    United States of America

  • Lead Research Institution

    The University of Texas Health Science Center at San Antonio

  • Research Priority Alignment

    N/A

  • Research Category

    Secondary impacts of disease, response & control measures

  • Research Subcategory

    Indirect health impacts

  • Special Interest Tags

    N/A

  • Study Type

    Non-Clinical

  • Clinical Trial Details

    N/A

  • Broad Policy Alignment

    Pending

  • Age Group

    Adults (18 and older)Older adults (65 and older)

  • Vulnerable Population

    Other

  • Occupations of Interest

    Unspecified

Abstract

This enhancement seeks to generate knowledge about the impact of the COVID-19 pandemic on care for persons with dementia and their families. The project will leverage work with its stakeholder advisory council, which includes people living with dementia, family caregivers, healthcare clinicians, and community-based organizations such as memory centers and the Alzheimer's Association, to better understand the needs and priorities of these stakeholders related to COVID-19. The project team will develop a prioritized list of research questions around palliative care, while examining questions and outcomes related to COVID-19 from the perspectives represented on the council and their wider networks of constituents.