The Role of Good Governance and the Rule of Law in Building Public Trust in Data-Driven Responses to Public Health Emergencies

  • Funded by UK Research and Innovation (UKRI)
  • Total publications:1 publications

Grant number: AH/V015214/1

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Key facts

  • Disease

    N/A

  • Start & end year

    2020
    2021
  • Known Financial Commitments (USD)

    $568,571.16
  • Funder

    UK Research and Innovation (UKRI)
  • Principal Investigator

    Jan van Zyl Smit
  • Research Location

    United Kingdom
  • Lead Research Institution

    British Institute of International and Comparative Law
  • Research Priority Alignment

    N/A
  • Research Category

    Policies for public health, disease control & community resilience

  • Research Subcategory

    Policy research and interventions

  • Special Interest Tags

    Data Management and Data Sharing

  • Study Type

    Non-Clinical

  • Clinical Trial Details

    N/A

  • Broad Policy Alignment

    Pending

  • Age Group

    Not Applicable

  • Vulnerable Population

    Not applicable

  • Occupations of Interest

    Not applicable

Abstract

This research, at the intersection of law, ethics, citizen deliberation, public health and data science, aims to develop a distinct arts and humanities, values-based framework to help understand and address the challenges posed by data-driven responses to public health emergencies and the need to build public trust. In their COVID-19 responses, states have relied on data-driven approaches to justify far-reaching measures including closing entire business sectors and categories of travel, curtailing personal liberties and requiring compliance with new technologies for contact tracing and social distancing. To be effective, such measures must be internationally co-ordinated, nationally adopted and adhered to by a high proportion of the public. Trust underpins both national adoption and public adherence: trust in international institutions, in the measures, and their scientific foundations. This project will examine two critical enablers of that trust: good governance and the rule of law. It aims to provide practical guidance on how international and national institutions can build public trust in the processes by which they design and implement data-driven responses to public health emergencies. The research consists of four interconnected work packages which examine (1) International governance frameworks for public health emergencies (2) Values-based principles to guide data-driven responses by national institutions including governments, parliaments, courts and police (3) Reforms that may be needed to data governance (national and international) given the scale of personal data sharing that is required (4) A citizen jury deliberation on the trustworthiness of data-driven measures and what additional safeguards may be needed.

Publicationslinked via Europe PMC

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Digital health and primary care: Past, pandemic and prospects.