The Role of Good Governance and the Rule of Law in Building Public Trust in Data-Driven Responses to Public Health Emergencies
- Funded by UK Research and Innovation (UKRI)
- Total publications:1 publications
Grant number: AH/V015214/1
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Key facts
Disease
N/A
Start & end year
20202021Known Financial Commitments (USD)
$568,571.16Funder
UK Research and Innovation (UKRI)Principal Investigator
Jan van Zyl SmitResearch Location
United KingdomLead Research Institution
British Institute of International and Comparative LawResearch Priority Alignment
N/A
Research Category
Policies for public health, disease control & community resilience
Research Subcategory
Policy research and interventions
Special Interest Tags
Data Management and Data Sharing
Study Type
Non-Clinical
Clinical Trial Details
N/A
Broad Policy Alignment
Pending
Age Group
Not Applicable
Vulnerable Population
Not applicable
Occupations of Interest
Not applicable
Abstract
This research, at the intersection of law, ethics, citizen deliberation, public health and data science, aims to develop a distinct arts and humanities, values-based framework to help understand and address the challenges posed by data-driven responses to public health emergencies and the need to build public trust. In their COVID-19 responses, states have relied on data-driven approaches to justify far-reaching measures including closing entire business sectors and categories of travel, curtailing personal liberties and requiring compliance with new technologies for contact tracing and social distancing. To be effective, such measures must be internationally co-ordinated, nationally adopted and adhered to by a high proportion of the public. Trust underpins both national adoption and public adherence: trust in international institutions, in the measures, and their scientific foundations. This project will examine two critical enablers of that trust: good governance and the rule of law. It aims to provide practical guidance on how international and national institutions can build public trust in the processes by which they design and implement data-driven responses to public health emergencies. The research consists of four interconnected work packages which examine (1) International governance frameworks for public health emergencies (2) Values-based principles to guide data-driven responses by national institutions including governments, parliaments, courts and police (3) Reforms that may be needed to data governance (national and international) given the scale of personal data sharing that is required (4) A citizen jury deliberation on the trustworthiness of data-driven measures and what additional safeguards may be needed.
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