Registry of SARS-CoV-2 infection in patients with hemoglobinopathies and / or splenectomies: epidemiological surveillance and study of morbidity and mortality in risk groups

  • Funded by National Institute of Health Carlos III [El Instituto de Salud Carlos III] (ISCIII)
  • Total publications:0 publications

Grant number: COV20_00675

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Key facts

  • Disease

    COVID-19
  • Funder

    National Institute of Health Carlos III [El Instituto de Salud Carlos III] (ISCIII)
  • Principal Investigator

    Elena Cela de Julián
  • Research Location

    Spain
  • Lead Research Institution

    FUNDACION INVESTIGACION BIOMEDICA HOSPITAL GREGORIO MARAÑON
  • Research Priority Alignment

    N/A
  • Research Category

    Epidemiological studies

  • Research Subcategory

    Disease susceptibility

  • Special Interest Tags

    N/A

  • Study Type

    Non-Clinical

  • Clinical Trial Details

    N/A

  • Broad Policy Alignment

    Pending

  • Age Group

    Unspecified

  • Vulnerable Population

    Unspecified

  • Occupations of Interest

    Unspecified

Abstract

The SARS-CoV-2 infection registry in pediatric patients with clinically serious hemoglobinopathies, such as sickle cell disease (SCD) or Thalassemia major (TM), among others, and / or splenectomized patients aims to collect relevant epidemiological information for the surveillance of this risk group; It is intended to study the morbidity and mortality in this population in addition to the quantification of the resources used by this population during the current epidemic situation (hospitalization rate, treatments used, admission rate to intensive care units, among other markers). of an observational, descriptive, multicenter and ambispective study. With this study we want to study the socioeconomic impact and epidemiology of the COVID-19 disease in this population group.