Accelerating Access to Individual Participant-Level Data via the Vivli Platform

Grant number: 222346/Z/21/Z

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Key facts

  • Disease

    COVID-19
  • Start & end year

    2021
    2024
  • Known Financial Commitments (USD)

    $1,403,852.72
  • Funder

    Wellcome Trust
  • Principal Investigator

    Dr. Rebecca Li
  • Research Location

    United States of America
  • Lead Research Institution

    Vivli (Centre for Global Clinical Research Data)
  • Research Priority Alignment

    N/A
  • Research Category

    Health Systems Research

  • Research Subcategory

    Health information systems

  • Special Interest Tags

    Data Management and Data Sharing

  • Study Type

    Non-Clinical

  • Clinical Trial Details

    N/A

  • Broad Policy Alignment

    Pending

  • Age Group

    Not Applicable

  • Vulnerable Population

    Not applicable

  • Occupations of Interest

    Not applicable

Abstract

Data repositories (such as IDDO and Vivli) have played a significant role in making research data available for secondary use. However, access to data needs to be further enhanced for accelerated innovations on infectious diseases by addressing the friction in data contribution, discoverability, access, and reuse. There is a strong alignment between Vivli the Wellcome's visions of improving the discovery and accessibility of Individual Participant Data related to COVID-19 in the short term, and for other infectious diseases in the long term. With this grant we seek direct support for discoverability and accessibility of data related to COVID-19, and to directly support Vivli to become an effective node in the "FAIR Data Network". The grant will focus on the following primary objectives: Recognition and credit for data contributions, Accelerated access to Individual Participant Data (IPD) hosted by Vivli, Discoverability of IDDO studies via the Vivli platform, and Discoverability of IPD hosted by Vivli and its platform partners (including IDDO) based on rich metadata).