Qanuinngitsiarutiksait 3: Developing mechanisms to ascertain Inuit data sovereignty in Manitoba

  • Funded by Canadian Institutes of Health Research (CIHR)
  • Total publications:239 publications

Grant number: Unknown

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Key facts

  • Disease

    COVID-19
  • start year

    2022
  • Known Financial Commitments (USD)

    $192,500
  • Funder

    Canadian Institutes of Health Research (CIHR)
  • Principal Investigator

    N/A

  • Research Location

    Canada
  • Lead Research Institution

    University of Manitoba
  • Research Priority Alignment

    N/A
  • Research Category

    Health Systems Research

  • Research Subcategory

    Health information systems

  • Special Interest Tags

    Data Management and Data Sharing

  • Study Type

    Non-Clinical

  • Clinical Trial Details

    N/A

  • Broad Policy Alignment

    Pending

  • Age Group

    Adults (18 and older)

  • Vulnerable Population

    Disabled persons

  • Occupations of Interest

    Unspecified

Abstract

Inuit have long been underrepresented/invisible in the "data world". Despite decades of data being collected, Indigenous peoples continue to experience considerable inequities. This has led Indigenous nations to call for data sovereignty, which can be defined as "managing information in a way that is consistent with the laws, practices and customs of the nation-state in which it is located". Our overarching goal is to strengthen MIA's ability to engage and respond to pandemics, by expanding its data sovereignty capacity. This proposal is a first step towards the development of an Inuit-centric, state-of-the-art data sovereignty infrastructure built to support MIA's role as an advocate and service delivery organization serving the needs of Inuit. This project will, 1.Develop Inuit Qaujimajatuqangit-informed governance and management policies to ensure Inuit data sovereignty; 2.Create and implement a respondent driven survey mapping where Manitoba Inuit reside, their circumstances and their needs; 3.Survey Manitoba Inuit to document the impact of COVID-19; and 4.Create a data infrastructure to expand MIA's ability to document, advocate for and improve its COVID-19 and other work, and to support MIA's advocacy with federal, provincial and territorial governments. Our project will result in a sustainable Manitoba-led, MIA-based Inuit infrastructure that can be mobilized quickly to support informed decision-making on emerging issues (pandemics), and document needs for program delivery and advocacy. Our approach aligns with Indigenous self-determination and Inuit' aspiration for data sovereignty. Our work will be grounded in discussions (Integrated Knowledge Translation adapted to reflect Inuit Qaujimajatuqangit) with feedback provided by the Isumataiit Sivuliuqtii (Inuit Elders).

Publicationslinked via Europe PMC

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Development and Validation of the Intimate Partner Violence Workplace Disruptions Assessment (IPV-WDA).

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Cross-Activity Analysis of CRISPR/Cas9 Editing in Gene Families of <i>Solanum lycopersicum</i> Detected by Long-Read Sequencing.

Creating health systems citizens: enhanced professional identity formation through a para-curricular distinction track in health systems transformation and leadership.

A Comparison of Clinical Diagnostic Classification Criteria Used in Longitudinal Cohort Studies of the Alzheimer's Disease Continuum: A Systematic Review.

Identification and Characterization of a Rare Exon 22 Duplication in <i>CFTR</i> in Two Families.

Structural Rearrangement in Cyclic Cu(II) Pyridyltriazole Complexes: Oxidation of Dabco to Oxalate and CO<sub>2</sub> Conversion to Carbonate.

Administration of FOLFIRINOX for Advanced Pancreatic Cancer: Physician Practice Patterns During Early Use.