Parent-mediated intervention for toddlers with autism: A multi-site randomized controlled trial of a group-based virtual program that empowers parents as change agents

  • Funded by Canadian Institutes of Health Research (CIHR)
  • Total publications:1 publications

Grant number: 202109PJT

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Key facts

  • Disease

    COVID-19
  • Start & end year

    2021
    2024
  • Known Financial Commitments (USD)

    $450,241.54
  • Funder

    Canadian Institutes of Health Research (CIHR)
  • Principal Investigator

    N/A

  • Research Location

    Canada
  • Lead Research Institution

    Holland Bloorview Kids Rehabilitation Hospital (Toronto)
  • Research Priority Alignment

    N/A
  • Research Category

    Research to inform ethical issues

  • Research Subcategory

    Research to inform ethical issues related to Public Health Measures

  • Special Interest Tags

    Digital Health

  • Study Type

    Non-Clinical

  • Clinical Trial Details

    N/A

  • Broad Policy Alignment

    Pending

  • Age Group

    Adults (18 and older)Children (1 year to 12 years)

  • Vulnerable Population

    Other

  • Occupations of Interest

    Unspecified

Abstract

This project uses a rigorous research design to evaluate an innovative early intervention program for toddlers with autism spectrum disorders (ASD). The program builds on an evidence-based in-person model (Social ABCs) that uses direct in-the-moment coaching to help parents learn skills to support their toddlers' development. Significant barriers exist to accessing early ASD-specific interventions, including long wait lists due to limited system resources (eg. insufficient funding to meet caseload, lack of sufficient skilled workforce), exacerbated by restrictions to in-person care associated with families' distance from service centres, and now COVID-19 isolation measures. In response to these pressures, we adapted the intervention to increase efficiency and access (via group-based delivery of didactic content, with 1:1 coaching over a virtual platform). We plan to evaluate whether this innovative virtual group model (VG-Social ABCs) yields similar child and parent gains as seen in the original, longer in-person model. We developed the virtual model in rapid response to the COVID-19 pandemic, and pilot data shows us that this promises to be a powerful way to support families of toddlers with ASD at a developmental stage when they are most amenable to intervention. Beyond COVID-related isolation measures, there continues to be a significant need for increased access to evidence-based early intervention for toddlers with, or at risk for autism, as many families are currently waiting on years-long waitlists for service. Demonstrating the efficacy of this feasible and cost-efficient intervention, will encourage government decision-makers to fund this program for families, leading to increased access to intervention early in life, and improved outcomes for toddlers with ASD and their families. This model will also increase access for families who live in remote and rural regions who often have difficulty accessing important interventions, both within Canada and beyond. 

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