Conception of an integrative, comprehensive, sustainable and secure pandemic data donation project in Germany

The COVID-19 pandemic of the last 14 months has shown that successfully combating or containing the spread of the SARS-CoV-2 virus can only be achieved through (i) rapid (ii) early and (iii) regionally differentiated measures by decision-makers, the public health ways, and institutions can be reached. In order to be able to react quickly, early and regionally, the Robert Koch Institute (RKI) has launched two digital, mass data projects that improve both surveillance and situation analysis through real-time evaluations of high-resolution data, as well as quantitative modeling for the spread valuable data on incidence and mobility. The "Covid-19 mobility project" uses aggregated, anonymized, commercial mobility data that is derived from the movement profiles of approx. 50 million mobile phone users can be derived. The mobility project was and is an important tool to quickly measure mobility changes, especially as a response to lockdown measures or as a proxy for population-wide behavioral changes. The Corona data donation project (data donation app) was launched in April 2020. In this project, more than 500,000 users donate their personal data regarding heart rate, daily number of steps and sleep rhythm, which is obtained via wearable devices, i.e. fitness bracelets or watches. From aggregated individual time series, it was possible to use specialized computer algorithms to calculate whether individuals show symptoms of fever, an important indicator since fever is a symptom of Covid-19 disease. The group of donors is stable at half a million, the data donation is the largest data donation project of its kind in the world. In the next version (data donation 3.0), interaction with the donors will be possible, with which broad voluntary surveys and health surveys can be carried out in the group of users, e.g. regarding their state of health, Metadata and other personal data. In this project, both projects, the Covid-19 mobility project and the data donation, are brought together in an overall project and methodically integrated. The aim is to develop a mobility data donation, i.e. the possibility of donating individual movement profiles in addition to vital data. The aim is therefore the conceptual, technological and methodical development of an infrastructure for sustainable, pandemic data donation, the vital data,