Qanuinngitsiarutiksait 3: Developing mechanisms to ascertain Inuit data sovereignty in Manitoba

  • Funded by Canadian Institutes of Health Research (CIHR)
  • Total publications:0 publications

Grant number: 462711

Grant search

Key facts

  • Disease

    COVID-19
  • start year

    2021
  • Known Financial Commitments (USD)

    $196,065.15
  • Funder

    Canadian Institutes of Health Research (CIHR)
  • Principal Investigator

    Lavoie Josée G, Dederick Jeneen, Clark Wayne
  • Research Location

    Canada
  • Lead Research Institution

    University of Manitoba
  • Research Priority Alignment

    N/A
  • Research Category

    Policies for public health, disease control & community resilience

  • Research Subcategory

    Approaches to public health interventions

  • Special Interest Tags

    Data Management and Data Sharing

  • Study Type

    Non-Clinical

  • Clinical Trial Details

    N/A

  • Broad Policy Alignment

    Pending

  • Age Group

    Unspecified

  • Vulnerable Population

    Indigenous People

  • Occupations of Interest

    Unspecified

Abstract

Inuit have long been underrepresented/invisible in the "data world". Despite decades of data being collected, Indigenous peoples continue to experience considerable inequities. This has led Indigenous nations to call for data sovereignty, which can be defined as "managing information in a way that is consistent with the laws, practices and customs of the nation-state in which it is located". Our overarching goal is to strengthen MIA's ability to engage and respond to pandemics, by expanding its data sovereignty capacity. This proposal is a first step towards the development of an Inuit-centric, state-of-the-art data sovereignty infrastructure built to support MIA's role as an advocate and service delivery organization serving the needs of Inuit. This project will, 1.Develop Inuit Qaujimajatuqangit-informed governance and management policies to ensure Inuit data sovereignty; 2.Create and implement a respondent driven survey mapping where Manitoba Inuit reside, their circumstances and their needs; 3.Survey Manitoba Inuit to document the impact of COVID-19; and 4.Create a data infrastructure to expand MIA's ability to document, advocate for and improve its COVID-19 and other work, and to support MIA's advocacy with federal, provincial and territorial governments. Our project will result in a sustainable Manitoba-led, MIA-based Inuit infrastructure that can be mobilized quickly to support informed decision-making on emerging issues (pandemics), and document needs for program delivery and advocacy. Our approach aligns with Indigenous self-determination and Inuit' aspiration for data sovereignty. Our work will be grounded in discussions (Integrated Knowledge Translation adapted to reflect Inuit Qaujimajatuqangit) with feedback provided by the Isumataiit Sivuliuqtii (Inuit Elders).