Consultation with relatives: medium-term consequences of the COVID-19 measures for relatives

During the corona pandemic, we investigated four times how loved ones of people with an intellectual disability were doing and we asked about their well-being, that of their family member, their contacts, and care tasks. In this additional research, we ask the same relatives to answer questions about four topics in their own words as much as possible. We are curious whether loved ones (1) and their family members (2) have recovered and what consequences they experience from the corona measures. This knowledge contributes to improving crisis policy, aftercare in crises and support for loved ones. In addition, we investigate whether relatives arrange future care (3) and whether they experience changes in the provision of information and participation among healthcare providers (4) after the pandemic. This knowledge contributes to issues of scarcity and collaboration with loved ones in disability care. We disseminate and discuss the results with relatives, professionals, policy makers, healthcare providers and researchers.