Pandemic Preparedness Plan for common Neurodegenerative Diseases (PREP-ND)

During the COVID-19 pandemic, many patients with forgetfulness or movement disorders were unable or unwilling to contact their healthcare providers. This reduced accessibility to care has probably not improved the quality of life for these patients and their loved ones. Goal In this project, a working group of international experts, together with patients, draws up a plan on how we can maintain access to care for people with neurodegenerative diseases, such as dementia or Parkinson's disease, when this comes under pressure due to a (future) pandemic . Approach The working group brings together experiences and data from both general practices and hospitals to provide advice if a (corona) virus outbreak occurs. We divide this advice into three phases of the patient's journey: the phase before diagnosis has taken place, the phase of diagnosis and the phase after diagnosis. This working group converts the lessons learned into a plan in order to be well prepared for a new (wave of the) pandemic. This way, vulnerable patients continue to have access to care even during a pandemic, and scientific research into neurodegenerative diseases can continue. More information Help with dementia and corona website Alzheimer Netherlands