Vulnerability and resilience of chronically ill children in relation to the covid pandemic. Joint decision-making on appropriate care for the most vulnerable young people.

Children with chronic illness face additional challenges during the COVID-19 pandemic. We would like to know how those children are doing, and not just about their illness. Children and parents complete questionnaires about this before they come to the hospital. Purpose and method The aim of this research is to gain even more insight into: which children are doing well which children are having a hard time or are not feeling well how this relates to the corona pandemic What can we learn from children who are doing well and how can we support children who are having difficulties as best as possible? Tool for shared decision making Finally, we want to pay attention to what children themselves want to discuss with their healthcare provider. What does the child find important? Before an outpatient clinic visit, the child fills out an app (the previously developed Kindtool ) in which all domains of health are discussed. This tool encourages shared decision-making and motivates a change in behavior that is in line with what the child wants. In this project we will integrate this tool into the electronic patient file (EPD) and evaluate whether its use influences treatment choices made by paediatricians. We also investigate whether children experience more control over health-related problems by using the tool.