Knowledge synthesis quality of life of loved ones of people with disabilities (2019-present)

In recent years, there has been increasing attention for the quality of life of relatives and the entire family of people with a disability who require intensive care and support. Knowledge of the needs of relatives and their families is important in order to be able to support them better on this basis. In 2018-2019, Nivel, the Academic Workplace EMB, focused on people with (very) severe intellectual and multiple disabilities, and the Academic Workplace Living with an intellectual disability already conducted research into this with questionnaires and focus groups. This research is now being continued, but before we start, we want to know what research has been done in this area in the meantime - of which the COVID-19 pandemic is part. That is why we are looking for recent studies that have been carried out in the Netherlands and we are making a knowledge synthesis of them. In a final expert meeting, we will discuss the results as a stepping stone for further research into relatives.